Today, this evening, most of this last eight or nine months; I am plagued with confusion as to what to do with the fact that so many people keep saying, to or about me, statements which amount to: “but you are obviously intelligent... and very articulate”.
It is bad enough that I do not recognise myself anymore (I am essentially a stranger in my own head), but to have it heavily implied, over and over and over again, that I should, “really just be grateful that you have what you have”... My smile and confidence falters.
It is most likely true. Yet...
If I chop off your left thumb today: in eight months time, do you think that you would be able to muster much positive morale behind the fact that “well, at least I've still got ol' 'Righty'”?
Yes, I know, I wasn't exactly cracking the atom, or curing the cancer, or finding that pesky Higgs whatnot before various bits of my brain upped and died... But there is a sense of loss and grief, which are emotions that I have never really managed to get a proper handle on.
Part of me is dead. It was part of me, now it doesn't exist. But I don't cry for the physical loss.
I have always had a phobia of amputation. Yes, I know; “who doesn't?”. Well, mine has always been a bit more pronounced than some. The two scenes of the 'X-Files' which have stuck in my head, more so than any others throughout the years are the (possibly hallucinated) scenes in which Mulder wakes up in a hospital-style bed to discover that he has first had one of his arms amputated, and then later in the episode, the scene in which he awakens to find that his one remaining upper limb has also now been surgically stolen.
No amount of heart-felt, emotively-charged acting from Mr Duchovny could possibly have come close to depicting the visceral, anguished, bone-deep horror which I experienced, and continue to experience, when viewing or even simply remembering those scenes. Like I said; phobia.
Now, I have never experienced the emotional roller coaster which I can only imagine must ensue following the loss of a limb, and I hope never to be so brash as to suggest that I actually could imagine it without experiencing it. Yet... Wow, the word 'yet' really is becoming my new 'but'.
Digression: Why do we cry at funerals? Is it the fact that a person for whom we had emotional attachment has halted being? Or is it because a part of our world (through which we identify) has gone the way which, despite our daily denials, we all must go?
Now imagine that you are at your own funeral, only nobody has turned up because they are all convinced that you are still alive.
Funerals are for the living. We dress in black, we carry a solemn countenance, we say things about the deceased which we hope may one day be said about ourselves, we think of the deceased and what their life and actions amounted to, we think about our own personal world and what it means that this person has left it. This may only be the perspective of those of us whom have failed to be convinced of the 'eternal soul' theory of self, but since it is mine, and we are limited for time and patience, I shall proceed with the assumption that this is agreed. If it is not, I encourage you to track me down and invite me out for lunch.
And so much for funerals...
I am having a seriously hard time trying to conjure up an appropriate metaphor with which to explain what it feels like to no longer feel like yourself. But even that isn't quite what I am trying to say.
I could try to explain it in terms of being a computer, and having all of my various components replaced with inferior ones; I have less memory, less processing power, less RAM, my dot matrix printer churns out an endless stream of “Out of cheese” errors. Or I could describe it as going to sleep and then waking up, only to discover that somebody has replaced all of my furniture with cardboard boxes, and melted down my keys to make an ugly statuette, which now sits in a shallow hole in the floor - which I cannot for the life of me remember digging.
I am hemmed in on all sides by invisible, textureless walls. I cannot hold more than half a thought in my head at any one time without dropping something.
My materialist (in the classical sense) beliefs really turned around and took a big old chunk out of my arse. Actually: no they did not. But this whole bleak episode must surely, in the very least, serve as a nugget of evidence supporting such conceptual theories of the whole 'mind/body' issue which argue on the side of “consciousness is an emergent property of sufficiently complex matter” ...and all that jazz.
I used to think about these things. I had opinions and (mostly borrowed) theories. I used to argue with passion about the theoretical existence (or non existence) of 'free will'. I used to be able to think...
I miss me.
I used to say that I didn't really like me. Yet... I did. I was the way in which I experienced the world. For all of my flaws; be they emotional, motivational, habitual, conceptual... I was they guy whom I knew, and knew through. I was my portal to my existence, as you are to yours.
Now there is a new guy living in my house. He is slow yet terribly anxious. He is withdrawn yet easily angered. He is me yet not me. I do my best to get along with him, I try to figure out his likes and dislikes, I make efforts to engage with him about his interests. But he doesn't seem to care, and I just want my old friend back.
I guess that I really should be grateful for the fact that I was not more severely damaged by my cerebral infarctions. I should wake up every day and give thanks for the fact that I did manage to learn to walk again, that my motor control has improved to such a degree that I can once again read my own handwriting, that my bouts of unprovoked vertigo and motion sickness have lapsed to a comfortable rarity, that I only 'almost' fall over all of the time, that it only takes me ten times longer to write anything than it used to.
I am appreciative of these things, and realise that the above could easily be interpreted as the whinings of an ungrateful twat. This would almost certainly be true.
I have never been good at endings. Whether it is the forced dovetailing which seems to be expected from a piece of 'proper' writing, or the awkward handshake at the end of a semi-formal meeting with a therapist. I have always had a tendency to cut, run, and consider the untied loose ends later. Actually, that is not entirely true; I am more likely to cut, run, and then get lost on the way out of the building because my mind is so preoccupied with whether or not my parting gestures will be interpreted as rude or the height of social and considerate sophistication.
Let us indulge this parting consolation: the longer that you do something, the more it feels like you have always been doing it. The longer that you live in a house, the more it feels like your home. The more time that gets between you and something which is gone, the duller the ache for that which once was. As long as we steel ourselves against mythologising the past, and creating undefeatable, rampaging beasts of our former selves, we may just about find a way to sit down and have a friendly cup of tea with the person whom we have woken up as.
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